Smart Fun: On Becoming Pampered Campers and Smiling Sunrise-Watchers

On a deep-frozen wintry day in Michigan, it’s revitalizing to rekindle warm memories of our Bay Cliff Post-Polio Wellness Retreat last September…

Offered for the past 11 years at the Bay Cliff Health Camp in Michigan’s Upper Peninsula, such post-polio wellness retreats have created a wonderful opportunity for polio survivors.

The exceptional feature of these wellness retreats is that they have been designed to zero in on the unique and little-known needs of people who are growing older with polio’s late effects.

Located 28 miles northwest of Marquette, Bay Cliff’s woodland getaway is not only beautifully situated on the shores of Lake Superior; it is completely wheelchair accessible. This retreat’s venue and program design intentionally foster a safe haven for open exchange among polio survivors.  Everyone is encouraged to feel like part of a supportive family of friends.

These adult campers arrive, ready to learn and have fun. This year, over 40 polio survivors, along with friends and spouses participated in the retreat’s full range of daily programs that were designed to address wellness of mind, body and spirit. Everyone received individualized attention from a blend of volunteer retreat facilitators—post-polio physicians, counselors, nurses; physical, occupational, and recreational therapists; members of the clergy, and those from a wide range of other helping vocations.

As my winter reverie brings our Bay Cliff experience into even clearer focus, I realize that we were indeed having smart fun. First, we had intelligently chosen to learn even more about living with a post-polio disability. We were shrewd seekers of good health — reaching out to discover how to incorporate new positive health behaviors into our lives.

Every day we attended educational programs. Topics ranged from up-to-date information about post-polio syndrome, to exercise, to meditation, to tapping into our spiritual strength. People learned all kinds of new information and came to practical, often profound revelations.

Here’s one practical piece of camping information that Mark discovered:

“Powered chairs and crutches are much more effective in the camp environment than manual wheelchairs.   There is too much stress put on the shoulders with the manual lightweight chairs, especially when traversing the inclines around the camp.”

Perhaps as powerful, was the support and information that post-polio participants exchanged with each other. We openly shared life experiences that included many of our well-earned secrets for living a successful life with a disability.

Bonnie revealed:

“I find as I am held captive more and more by my advancing disability, more adjustments have to be made and sometimes I am not sure how or what to do.  Or sometimes, I am not aware that adjustments even need to be made because I am in denial or just have not come to the conclusion that things have changed.  At some points, I find I am owned by regret rather than taking action (or maybe less action in the case of PPS).  Being at Bay Cliff is so freeing…no pretenses… and I am informed by my own regret rather than being owned by it.  Sometimes it takes being with others who share your issues to realize problems need confronting, and I learn lessons on how to confront them in a safe, healthy way.“

As people shared many of their personal challenges and concerns, deeper friendships were nurtured.  And Frederick Maynard, M.D. international expert on the late effects of polio, continued to be one of our best friends. He not only was a primary founder of the program in 2006, he has also attended each year, providing medical direction and generously answering each person’s particular questions. During the course of every day, he could be seen freely helping retreat participants with medical advice and counsel, whether it was during a planned group session or in a spontaneous one-on-one encounter. As one camper disclosed, “Words cannot express the level of devotion and commitment that Dr. Maynard has for the polio population. I have grown to love and respect him for his efforts, knowledge and deep understanding of what we are going through. You can see it in his eyes.”

We were not only ready to learn; we were also ready to have fun. This often meant taking part in experiential learning opportunities, which were set up to be both engaging and enjoyable.  For one short week we had become pampered campers and smiling sunrise watchers.  Every activity was adapted for us so we could participate. We went fishing, swam, danced, sang, walked and rolled on nature hikes. We had lively fun in the balmy warm weather as we learned important tips on how to stay healthy. In our sixties and seventies, many of us had first-ever recreational experiences, like learning how to dye silk scarves or discovering how to use a bow and arrow.

On having fun, Cathleen conveyed:

“I’d never heard of the NuStep and really enjoyed trying and learning it. I thrilled to the recumbent hand-cycling with Don as we flew down a country road incline. He adjusted and fixed a bike so it fit me. Dr. Maynard kindly helped me walk into Lake Superior, however briefly! There were so many fabulous experiences that I can’t list them all. I’d never been fishing before and thoroughly enjoyed that sunny and relaxing afternoon in the pontoon boat on Lake Independence with Max, the expert fisherman. I loved the warm pool and helpful lifeguard. I remember the wonderful picnic in the sunny orchard and picking plums afterwards…”

Others described their retreat experience as:

“…a homecoming…mellow… warm… grounding… humorous…enlightening…  expanding… reflective…challenging…flirty…”

Oh, and before the week was up, we had adopted a crazy, new, original camp song destined to become a Bay Cliff classic. We sang it throughout the week to the chorus of the “Beer Barrel Polka.”  For all the brave songsters reading here, you may want to try singing it…

The Post-Polio Polka

Roll out the scooters

We’ll have a barrel of fun!

Whip on your braces

We’ve got the blues on the run!

Seize both your crutches

Sing out a song of good cheer.

Now’s the time to dance our polka

‘Cuz the gang’s all here!

 

We’re all at Bay Cliff

Happy to sing you this tune!

We “get” each other

And we’ll be leaving too soon.

Dance how you want to

Now we have nothing to fear!

Polio’s become our polka

‘Cuz the gang’s all here!

 

Catchy music, fresh air, new information, physical activity, emotional support…the positive impact of Bay Cliff’s post-polio retreat can be long-lasting.

Simply rekindling the warmhearted musical memories of our retreat has revitalized my own feelings of inspired renewal and loving regeneration. That’s a wonderful gift.

It’s a big bear hug on this very cold winter day.

Or, perhaps better said…

it’s a big Bay Cliff hug.

 

 

 

 

Scrunch! (that’s the sound of a friendly e-hug),

Sunny

P.S. Have you ever thought about starting a post-polio wellness retreat in your area?

 



The original version of this article was published in Post-Polio Health: Winter 2018 (Volume 34, Number 1.)

Zest at its Best: Wheeling Through Portugal and Spain

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The Cathedral of Santiago de Compostela

The following story is about a spiritual pilgrimage through Portugal and Spain.

Susan Peters, the main author of the account, has a spinal cord injury and is a full time wheelchair user. Her story of spiritual renewal, physical daring and warmhearted camaraderie makes me want to return to Europe to travel “The Way” like she did. It must have been such a beautiful experience. See if you agree…

Sunny

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With Duct-Tape and Daring: Elated Friends Complete Rugged Wheelchair Adventure

By: Susan Peters with Sunny Roller

The Camino de Santigo or “Way of St. James” is a mostly mountainous route that adventure travelers take imagesvvvto reach the Cathedral of Santiago de Compostela.  Tradition has it that the remains of Jesus’ apostle, James, are buried at this cathedral in northwestern Spain. Hundreds of thousands of Christian pilgrims and many others set out each year from a variety of popular starting points across Europe, to make their way to the sacred site. Most travel by foot, some by bicycle, and a few travel, as their medieval counterparts did, on horseback or by donkey. Learning this, I decided to try it last Fall–using my wheelchair.

I’ve been a manual wheelchair user due to paraplegia from a spinal cord injury for 40 of my 68 years and I am still looking for adventure and mountains to climb.  So, when a friend of mine suggested that I test my audacity and dare to set off on a wheeling expedition for hundreds of miles along the Camino de Santiago, in Europe, my eyes lit up. In need of personal renewal and sparked by the possibilities of this expedition, I made a commitment to travel “The Way.” Not just for its physical challenges, but also to rejuvenate my zest for life.

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There are many routes to the cathedral. Pilgrims on the Way of St. James walk for weeks or months to visit the city of Santiago de Compostela. Some Europeans begin their pilgrimage on foot from the very doorstep of their homes.

Soon I had recruited my hardy crew of four people–two hired guides from Portuguese Green Walks and two great friends. After avidly planning the trip’s daily itinerary, off we flew to Portugal on September 25th.There are many different routes to choose for this strenuous pilgrimage to St. James’ resting place, but to receive the certificate for traveling The Way, one must clock at least 120 kilometers and stay on a route marked with yellow arrows.  I selected the Portuguese way, beginning in the city of Valenca then along ancient paths north into Spain. Once I determined the route, the hard part was convincing people it could be done by wheelchair. Wrapped up in this initial challenge was actually finding a set of strong-willed, committed, physically-able helpers who not only believed it could be done, but also wanted to go. They were out there. I just had to look.

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Ready to roll from the beginning, Susan and friend Nuno, face a rocky road ahead.

Excited and ready to roll at the starting point, I immediately confronted several dozen stone steps leading down-down-down to a narrow ancient path and then a dirt trail. That was when reality hit me–this excursion would not be the slightest bit easy.  Every hotel was slightly different; so I was glad I had my friends with me to help with shower and toilet transfers, which was the hardest part of the trip, really. By day seven, the rough terrain had snapped off all of the metal screws on my front foot plate, and I had to continue the journey with a wheelchair that was partially duct-taped together.  As we pushed ahead, we came across so many gorgeous sites that also became challenging delights. We walked and rolled through bustling ancient towns and pastoral cow pastures.  We forded streams and bumped over bridges only a few inches wider than the wheelchair.

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The countryside.

Pushing and pulling, we climbed steep hills and zig-zagged our way down rugged, bumpy Roman roads that had been laid in ancient times using boulders or giant stones. Not easy or comfortable to roll over.

In spite of the obstacles we bashed up against from start to finish, this adventure through Portugal and Spain exceeded every one of my dreams.  All along the way, human warmth and camaraderie carried us.  I met pilgrims from the U.S., Brazil, Korea, New Zealand, Serbia, and from other parts of Europe.

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The cuisine.

With spontaneous chances to intermingle every day, fellow sojourners and I took delight in sharing warm companionship and stories of our trek. The people who live along the Camino wanted to commune and gave me a joyful sense of belonging. They energized us with constant encouragement, welcoming smiles, and nourishment of all kinds. And they shared so much–from replenishing my water supply, to enfolding us in big bear hugs, to sharing important secrets about the trails ahead.

With each new dawn I felt a fresh sense of renewal and restoration.  As we continued to walk and roll along the rocky hillsides and over singing woodland rivers, my companions and I came to hear The Way’s new harmonies that seemed to be caroling just for us. We sang and danced. We hugged trees.  We savored delicious hot meals–oysters, clams, rice, sausage, kale soup and Portuguese wine graciously served up at our wayside inns.  We happily stopped at so many shrines and churches along the way, praying for the power of love to heal our world’s wounded.

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Susan (center front) and comrades finally arrive at the cathedral.

After 120 kilometers, we arrived in Santiago at noon on day ten of our journey, just in time for Mass at the cathedral.   Quickly escorted to a front row seat, I was elated to experience the famous incense burner dramatically swinging right above my head.   Suspended and swaying back and forth from a very long rope through the resplendent cathedral over hundreds of pious onlookers, its wafting smoke and scent seemed to cleanse and coat us with a mystical sense of comfort and reassurance.

It was also my 68th birthday that day. So after the mass, we found a cozy outdoor café. With wine glasses clinking, we heartily celebrated our successful journey AND my birthday. A moment I’ll always remember. We did it! I did it! It was a wonderful feeling as we jubilantly turned ourselves into a lively Spanish fiesta.

I enthusiastically encourage others who use a wheelchair to consider taking the Camino de Santiago.  I was so thankful that my therapist had suggested I take a FreeWheel for my chair. (See photo below.)  It’s an attachment that enables your wheelchair casters to be lifted off the ground, turning your chair into a three-wheeler, so you simply roll over any obstacle: curbs, dirt trails, grass, gravel, snow, and sand. I couldn’t have gotten along without it. (To learn more go to https://www.gofreewheel.com/)

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The FreeWheel attachment on the wheelchair’s front enabled easier passage.

When you go, strong friends, a FreeWheel, patience and perseverance are a must.  Also remember to pack rain gear, a wheelchair repair kit, and layered clothing. If I can do it at my age, with arthritis and brittle bones, you can too.

For more information contact me at speters@msu.edu.

 

Bom Camino!

 

Susan Peters, Ph.D.  is an Associate Professor Emerita at Michigan State University, College of Education.  As a Fulbright Scholar and educational consultant for Ministries of Education, the World Bank, and UNESCO, her work focuses on inclusive education policy and practice for people with disabilities in cross-cultural and international perspectives.

 

In 2011 Martin Sheen starred in a movie titled THE WAY about one man’s journey to the cathedral. THE WAY is a powerful and inspirational story about family, friends and the challenges we face while navigating this ever-changing and complicated world. Martin Sheen plays Tom, an irascible American doctor who comes to France to deal with the tragic loss of his son (played by Emilio Estevez). Rather than return home, Tom decides to embark on the historical pilgrimage “The Way of St. James” to honor his son’s desire to finish the journey. What Tom doesn’t plan on is the profound impact this trip will have on him. Through unexpected and oftentimes amusing experiences along THE WAY, Tom discovers the difference between “the life we live and the life we choose.”   It is well worth watching.

Check it out here: 

 

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The above story by Susan Peters, Ph.D. was first published in the Spring/Summer 2016 newsletter, SCI Access. Distributed annually by the University of Michigan (U-M) Spinal Cord Injury Model System within the Department of Physical Medicine and Rehabilitation, SCI Access is sent to 1200 readers in Michigan and across the country. For more information about this program that focuses on people who are living with a spinal cord injury, see their U-M website:  http://pmr.med.umich.edu/SCIMS

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Thanks for Reading!

 

Want to add an adventure like this to your own To-Do List?

What do you think?  Feel free to comment…

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On Giving: An Epiphany in the North Woods

Giving to others is a good thing. Once in awhile, when cruising in for an afternoon latte at our Starbuck’s Drive-Thru, I warmlove to anonymously buy coffee for the person in line behind me. And then I zoom away–before they find out! That small gesture actually makes my eyes twinkle. Newly energized, it fills me with a quiet merriment as I chuckle and head into the rest of my day.

Generosity has actually been shown to stimulate happy feelings that light up centers of euphoria in our brains. In one study, brain scans revealed that when people made the decision to donate to what they felt was a worthy organization, the brain’s mesolimbic system lit up. This system produces dopamine, which makes us feel good. (See Hard-Wired For Giving and The Man Who Couldn’t Stop Giving)

Further, other scientists purport that generosity can even be an effective antidepressant. Wow. That would be much better than depending on expensive pharmaceuticals! If you are ever feeling down, I suggest that you reach out to another person with a small act of generosity. Spirits will be lifted in no time! Give someone a flower or a friendly phone call. Or, how about 37 cents?

“Why 37 cents?” you may ask.

Fifty-four years ago, in a remote village in the north woods a stranger’s small gesture gave me the chance to learn a huge life lesson. I’d like to share my story with you.

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When I was fourteen years old, I experienced a moment of enlightenment about the virtue of random acts of kindness. For me, it was an unmistakably spiritual experience.  Back in the 1960s my church youth group went on a missionary trip to Rapid River, a tiny town in Michigan’s Upper Peninsula. During the day, all thestream (2)aaa little kids in the area would come to the church for Bible School, which we led. Then in the evenings our group of teenage missionaries would enjoy a variety of social activities together. Well, one night, we all walked down to the A&W Drive-In for ice cream. I was happy to keep up with the gang, hobbling on my braces and crutches for the three-block adventure. I felt so accepted. We were having fun, joking with each other and goofing around. After we each purchased our evening treat, we strolled back a different way– this time through the center of the tiny town. It was a route which took us in front of the local bar. As we walked past the tavern’s old wooden entrance door, a drunken local stumbled out. He immediately spotted our group and suddenly zeroed in on me. “Hey, girl!” he slurred, for all to hear. The entire group abruptly stopped walking. The kids’ eyes widened and quiet gasps came from a couple of the girls. Then dead silence. I stood still as the man approached me. He outstretched his hand to me and said, “Here girl. You need this more than me.” He dropped 37 cents in nickels and pennies into my hand and staggered across the street into the darkness. Now hushed, our once joshing group just silently walked. I especially, was speechless. But more than that I was so embarrassed. Then I got confused and shook up, but tried not to show it as we headed back to the church. Why did that man pick me out of all those kids? I had tried so hard to fit in with the group, but once again was forced to be the peculiar, atypical one. At least that’s how it felt to a teenager desperately seeking peer group acceptance.

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Located inside the Hiawatha National Forest, Rapid River has a population of 1,492 and is near Escanaba, Michigan along U.S. Highway 2. It’s a great place to go fishing if you’re ever up that way!

A little while later, my minister found me sitting on the front steps of the church under the night sky, looking up at the stars and down at my slightly deformed feet, just thinking. He sat down beside me, put his arm around my shoulders, and shared that he had heard about what happened. Sad and confused I shared the story from my perspective.

That’s when he taught me the life lesson I have never forgotten. He predicted there would be many times in my life, because I had such an obvious disability, that people would want to give me help–in good faith–even if I didn’t need it. He taught me that I then would be blessed with an opportunity to help them, strengthen them and love them by graciously accepting their gestures of kindness whenever possible. I did not need that man’s 37 cents, but by thanking him for it I would have been giving him the opportunity to be blessed in new ways. Somehow, my gratefully receiving the 37 cents would have made life a little better for both of us.

In her sermon just this past summer, my church pastor, Lori Carey, unknowingly expanded upon my teenage epiphany. She explained that every so often in life, just like that night in Rapid River, an amazing opportunity opens up. We are called to engage in a sacred give and take when two souls can connect and feel the presence of God.  There is an interesting thing that happens in this exchange of give and take. The roles of giving and taking become blurred. You see, the one who gives can only give if the gift is accepted. Receiving the gift is a gift in return. Suddenly, in the act of give and take, the giver receives the acceptance of and connection with the receiver– and the receiver becomes a giver by accepting the gift. Both parties give and receive simultaneously. We seamlessly move between both.

Perhaps we’ve learned somewhere that the receiving part is not as important as the giving part. Not true, she went on to share. Graciously receiving completes the act of giving and unifies the giver and receiver. It’s a beautiful mystery.

I’ve never forgotten that long-ago 37-cent encounter way up in the north woods. I discovered that whenever I receive graciously from another person, that suddenly becomes my opportunity to become a generous, loving giver as well.

It’s true. That stranger’s meager handful of change initiated a million dollar lesson for me.

 

 

Thanks for Reading,

Sunny

 

A great big thanks to Pastor Lori Carey, Rosalie Meyer, and Susan Rasmussen for their thoughts and words. They helped shape this post.

 

P.S.  Weight loss update: Aaargh! I have lost a tiny bit of weight since I last reported! My loss since starting in mid-May is only up by 1/2 lb.– at 9.5 lbs. total. I continue to work out 2-5 times a week on the NuStep and eat WeightWatchers recipes. The problem: my gym was closed to me for one whole week and my food portion sizes are not controlled enough. Bummer. But I refuse to become discouraged and give up!  I know what I need to do.  Any advice or encouragement you might have sure would be appreciated today!

 

sr exercising 2Oh! Did you see the recent company blog post from NuStep?

Click on this link: NuStep for polio survivors

 

 

 

 

 

 

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Of That Unspoken Feared “Post-Polio Syndrome”…

And so, Way Back When: The Lost Anthology, continues to unfold…

This next contribution, chapter five, by the late Norene Seinkbeil was written when she first began to experience her own physical changes due to post-polio syndrome. So many of us felt her desperate sense of fear and a bewildering resurgence of grief when we learned there was no cure for what was to come–only management strategies. But, like Norene, most of us eventually figured out how to re-frame our priorities and perspectives on life–to move forward with optimism, grace and a renewed sense of purpose.

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Post-polio syndrome is a new condition that affects the survivors of polio decades after the acute illness of poliomyelitis. The major symptoms are pain, fatigue and weakness. New weakness is considered the hallmark of post-polio syndrome. Less commonly, survivors may have new sleep/breathing/swallowing problems and some survivors may also experience muscle atrophy or muscle wasting.

–Joan L. Headley, M.S.

For more information on post-polio syndrome click here:  phi logo

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shadowxxIt’s How You Feel Within

–by Norene Senkbeil, polio survivor, (1934-2010)

We hide our fears,

Our weakness we somehow muster under

Go on and on and then…

The rumbles begin like thunder.

At first it’s just a little tired

And vitamins will help.

Some exercise, a little more sleep

Just get a hold of yourself!

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Then comes the time when there’s no push left,

“I can’t do that anymore”

And your family says “Come on, come on,

You’ve never been a quitter before.”

So you struggle up and say

“Yes that’s true.

I’ve been through so much already17711cc

I can beat this too!”

And then one day

That remembered day

You knew.

The rounds of doctors start,

And prayers flow from the heart.

Please Father God, not this again

This battle I must win!

But prayers go unanswered, weakness sets in

And pain, and most of all Fear.

Where will it end for me, Lord?

How will I be next year?

Take this my child and serve me wellgeranium

Even if it’s just your example

People will know by your actions and faith

That my care is always ample.

But what can I do Lord, to further Your Kingdom?

Locked in this body, that hurts when it moves

These legs with unsteady gait.

Remember my child, Milton wrote long ago–

“They also serve who only stand and wait.”

Acceptance and peace begin anew.P1000934xx

Your heart can sing again.

There is a wonderful life for me now…

It’s how you feel within!


ABOUT  THE  AUTHOR

Norene Janet Shepard Senkbeil, 75, passed away January 1, 2010. She was born February 1, 1934 in Wheeling, WV. Norene grew up in Wheeling and attended Tridelphia High School. She married Walter Senkbeil in 1951 and they later moved to Tampa in 1960. Her love and devotion was directed toward her family and her church. Norene shared her creative gifts through poetry, painting and numerous arts and crafts.

In 1987, at the time she submitted this poem for the anthology, she wrote:

“In June 1955, at the age of 21, I contracted polio while living in Cincinnati, Ohio. I had two small children. I came down with what was referred to the as all three types. High and low spinal, and bulbar. Was in an iron lung, in a coma, and not expected to live. Then as now, the power of prayer prevailed and I gained strength. Was the first gentile woman admitted to the Jewish hospital, called Sheltering Oaks, for therapy. I gradually grew stronger, walked again and had three more children. Although many problems existed I managed to do just about as much as most moms did. Others in this situation know the struggle and how ‘we’ must try harder.”

 

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The Search for Anthology Authors Continues…

Almost 30 years ago (1987), friends, Barbara Pike, Charlene Bozarth, and I sent out a nationwide request to polio survivors who might want to have their writings published in an anthology. Manuscripts came in, but life took over, and we were never able to create and publish the collection, as we had hoped. When I lost track of Barbara in Ohio, and Charlene, who left Michigan for New Mexico,  I protectively stored the writings for resurrection at a later date.

Well, this year is that later date! I recently rediscovered them in my files, dusted them off, and now plan to take the liberty of publishing them by way of this blog.  Some are essays. Some are poems. They are heartfelt, intimate and describe living with polio in earlier times. We can still resonate with their feelings and messages.

Here is a list of the missing anthology authors whom I would like to contact for permission to publish their work, now, so many years later. Since the publishing of chapter one, we have found five authors, but have many yet to find.

If you are one, or know of one, please contact me at sunnyrollerblog@gmail.com.

Thank you!

Sunny

Floy Schoenfelder

Lee Whipple

William Wild

Agnes Fennewald

Charlotte Snitzer

Ann Bradley

Toni Keffeler

Sofia Baltodano

Bruce Berman

Roberta Dillion Williams

Becky Lee Vance

Jean Hamm

Ann Goodhall

Ginger Sage

Shirley Hile Powell

Elizabeth Reeves

Doris Vanden Boogard

Donna L. Mattinson

Marie Galda

Alan M. Oberdick

Emma Blosser Hartzler

R. N. Hackney

Robert C. Huse

 


If you appreciate the support that this blog can give to you and to others, please consider supporting it financially–offering your small gifts of encouragement to help keep the messages coming. Just click on the “donate” button at the right sidebar. Sometimes a little financial endorsement really makes a big inspirational difference…


 

A Couple of Thoughts on Spirituality and Disability

Well, New Year’s Eve has come and gone and January rouses me into wintertime musings about life-Sun on river 22-past and present–as I begin to clarify my still-nebulous resolutions for the year ahead.

As imbibing in the spirits helped many of us ring in 2015, another kind of spirit comes into focus for me–a more important one–my spirit. Better said, my spirituality. It’s what gives me guidance and gets me through.

Spirituality: “the core part of us that gives us the power to transcend any experience at hand and seek meaning and purpose, to have faith, to love, to forgive, to pray, to meditate, to worship and see beyond the physical here and now. Spirituality is the inner force that animates human life.”

As we grow older, it seems that we have more life losses to grieve and be sad about. We are losing physical prowess, friends, lovers, family members and familiar things, like paper books, hand-written letters in the mail, even fun stuff like funny comic books, drive-in restaurants and movies.

But may we console ourselves with the simple, but profound truth that grief and happiness can gracefully exist side-by-side in our hearts.

I believe that as we grieve the very gradual loss of our physical abilities, we can increase the power of our spirits in new and exciting ways.

Personally cultivating our spirituality can not only have a positive and powerful effect on our own strength and energy, but also on the health and well-being of many people around us.

Here are a couple of personal reflections I’ve had along my spiritual way. Do either of them ring true for you?

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Personal Reflection Number One…

So many of us were told as youngsters that we had to depend on our brain to get us through life with an unusual body that was partially paralyzed. “Be smart, clever and well-educated and you will show people you can fit in.” 

But there was another important piece. Body and mind are interlaced with our spirit to make us complete. Some even say that we are all spirits on earth who just happen to have a body. And that spiritual transcendence can help us face our physical differences and challenges “with a clearer perspective, rising above the limits and pain initially imposed by the disability.”

As a person who has been living with a post-polio disability for sixty-two years now, my spirituality has helped me make sense of being unusual, physically. God works in unexpected ways, at surprising times and through unique people like you and me.

 

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Personal Reflection Number Two…

We have the power to effortlessly transfuse other souls on earth with enthusiasm and assurance. I really believe that we who have a socially- obvious disability with braces, crutches, wheelchairs, and a variety of physical differences have been put on a stage in this “theater of life.”

Like it or not, people notice us. People look at us. People even stare at us. And that has given us an automatic power to influence others in positive ways.

Being a person with a disability who genuinely emanates spiritual peace can have an amazing effect on so many people around us. How many times have you heard people say “you are such an inspiration to me?” Spiritual meditation can bring us a peaceful heart. That serenity in our eyes and in our overall countenance, surrounded by our appliances and asymmetries, automatically gives hope to those who are seeking inspiration.

Did you see the woman on Dancing with the Stars last year who came in second dancing on two prostheses? The power of her positive influence in America and around the world is huge. She has no idea.

And neither do we. We can and have been influencing the human condition on earth as we have transcended and transformed our polio-caused disability from weakness into strength.

When you think of it, there is great irony in knowing that because we have lost muscle power, we have the potential to give muscle, vitality and strength to the world and we don’t even have to say a word.

First and foremost, we simply have to be present among our fellow human beings. That’s it. Just show up. Just be there, among people. All the rest that we choose to do–like speaking, writing, listening, leading, following, praying for people, contributing through our work or our family jobs or a hundred other roles we may play—all of that is simply what we do. But what about the spirit driving all that activity? How does the divinity of our inner spirit inform our activity?

As I write this blog post, my first 2015 resolution is slowly emerging into crystal clarity.  I want to tap into my spirituality every single day this year…because I really, really, really respect and like my spirit. I will ask spirit every morning to lead me through the activities of that new day.

Okay spirit, I’m ready. What will happen? This is exciting.

 

4ec810a01e1d6PICT0016_large_medium 1Wishing you an enthusiastic year ahead.……….

 

Did any of these personal reflections on spirituality resonate with you?

Sharing your unique personal insights here might help enlighten someone who is earnestly searching for his or her own spiritual answers…

 

 

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