Wow.
I’ve been working hard
— writing, writing, writing —
because I want to do a good job for us.
I think I need a coffee break!
If you think you might like to send me a Starbuck’s coffee today,
it’ll keep me going and I’d LOVE it.
Here’s how…click on the logo below and send a cup of coffee to elsol@umich.edu.
If you would like to support the work of Post-Polio Health International,
click Post-Polio Health International and
choose a method to contribute.
Thank you! Thank you! Thank you!
Cheers to all of us!
And now, “back to the drawing board…er…computer…er…”
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Thank you.
Good Morning! I am from the South, Mississippi. I had polio when I was 8 in 1949. When the polio virus was through with me I was completely paralyzed on my right side. I spent 3 months in the Mercy Hospital in Vicksburg. The doctors predicted that I would never walk but God is good and He had other plans. At the end of 3 months I went home with a brace on my lower right leg and crutches. My right arm and leg were still very weak but gradually I gained back muscle function and was able to get out of the brace and crutches within a remarkably short time. I graduated college and became a registered nurse. I began to experience PPS mid life but I had a career and 3 children and was a pastor’s wife so I didn’t stop long enough to recognize what was happening. After a stent as the supervisor of OR and some days running all day and then all night, a lot of damage was done to my leg muscles. When I was 55 I had breast cancer for the first time. After multiple surgeries (lumpectomy, mastectomy and reconstruction) I found I needed assistance to walk down the hall at the hospital. So I went down to physical therapy one day and told them I needed forearm crutches (like the ones I used as a child). They said, “Well there is a pair hanging on the wall, we don’t know where they came from so you can have them.” I started using one crutch but last year found I had to go to both to continue walking. Since my job as a manager took me all over the hospital, I began to require a scooter in order to continue walking. Breast cancer again came to call 10 years later in the other breast, but I was one of the fortunate ones, thanks to mammography and early detection. I continued to work until I was 68 years old. The most difficult thing for me has been the weakening of my arms and bilateral torn (non repairable) rotator cuffs. Having always depended on my arms to make up for weak legs it has been very frustrating. But I continue to do the things I enjoy, cooking, reading, teaching SS and spending time with my sweet husband, children and grandchildren. I still struggle and I guess rebel, against my disability but I try to work around my hurdles in order to continue doing what I enjoy, even though it becomes more painful.
I look forward to being a part of this site. Thanks
Just discovered this site and like the idea of networking. I’m a polio survivor (1953-7years old) who was able to become a Physical Therapist – there were 3 of us “old polios” in my class. At the age of 37 began to experience pps symptoms but primarily addressed them by moving out of the “on your feet” all day walking environment of a hospital into the Home health arena where I practiced for another 30 years, always using “energy conservation” as my mantra. 2 years ago had a spinal cord infarct which has left me primarily chairfast with limited ambulation with a walker or crutches. After trading our 5th wheel trailer for a tag along (not as many steps) we’ve been able to resume our fairly active lifestyle, modified.I think my prior experience as a polio person combined with my PT experience has allowed me to adapt to my present limitations. Look forward to further posts on this site
Great!
I knew Sunny in High School where she was an inspiration to all who knew her. Her”can do” upbeat attitude and obviously sunny disposition are things that one never forgets. I have had rheumatoid arthritis for about 27 years, and have had times when I could barely walk or use my hands. Had to quit doing the Home Care Nursing I love 14 years ago because I could not handle the physical elements of the position or the daily car travel in all weather. There were times I wanted to feel sorry for myself, when I needed help to get over a curb, or getting out of a car hurt so bad it brought involuntary tears to my eyes. But I never let myself despair and feel sorry for myself, because I had known courageous fighters like Sunny all of my life. They are proof that we humans can “take a licking and keep on ticking”, so you just pick yourself up and keep going day by day. Thanks Sunny for doing this blog and I know that you will get a lot of great followers with ideas on how each of us can handle our challenges and disabilities with grace and courage like you do.
Hi from the Sunbelt of the USA. While I did NOT know Sunny in school…I am reminded that my university girlfriend had a similar polio history that gave me some very early insight into so much of what is discussed here. (not to mention a very early insight to polio issues from her experiences and communications)
Perhaps, more like PENNY PITTARD MAROLDO, I became disabled later in life, too. Nearly 25 years ago, my critical event was with a lower spinal injury connected to a fall. Tailbone injury or Cauda Equina Syndrome is the term.
At first that brought me into direct contact with a sustained rehab and therapy process, use of mobility aids, pain, all that. Fortunately, my functional return was enough to get back into life, much as those with long ago polio were able to re-integrate back into life, some with more apparent evidence of a polio past than others.
What initially drew me to this ‘blog’ was a reference I had bookmarked a few weeks back concerning aging with a disability. I am now in my late 60’s and have had to come to terms with not only the normal aging process…but a decline is certain physical activity resulting from my activity.
As PENNY says, we experience and live the TIMEX slogan every day…”take a lickin’, keep on tickin'” I remember John Cameron Swayze’s TIMEX commercials of the day and how he’d end with that statement. So true…bulls eye…Bingo!
So…I’m here, just by catching a reference to aging with a disability, and following up on my bookmark to find some interesting inspiration right here.
Thanks.
John.