Prayer, Prioritizing, Patience, Persisting and P…

BOOK REVIEW

All the Steps I Have Taken Then and Now

by Linda L. Christianson

 

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“Our lives are like quilts – bits and pieces, joy and sorrow, stitched with love.” –Anonymous

 

Linda Christianson loves to quilt. Writing her memoir, much like creating a quilt, must have given her an important chance to examine and then thoughtfully interlace the pieces of her life together.

As she put pen to paper, Linda had to examine and reflect upon each piece of her life– growing up as a child who was living with polio, starting a career as a young woman, getting married, having children and now enjoying grandchildren. Weaving with words, she put her life in order–just as the quilter does when methodically sewing together colorful fabric shapes into what eventually becomes a fully congruent work of art.

Taking a look at one’s life with polio can be a grueling experience that takes gut-wrenching courage. One must unearth those deep childhood sorrows, the agonizing emotional horrors, physical losses, and frightening medical lacerations. Then the writer must somehow put them into perspective–explaining the pain and healing process from an adult point of view. That’s a lot of work.

But the reward for that arduous research and reflection is being able to finally and fully see the fiber of our life as a whole–to know our personal story as its own unique, intricate, even awe-inspiring narrative. Once the big picture crystallizes, the question soon becomes “how will we choose to frame our autobiographical portrait?” What spin do we want to put on our life as a whole?

Christianson has clearly chosen her spin. As she reviewed her life’s difficulties, she also took a fresh look at all of the wonderful people, family and friends, who had influenced and strengthened her through so many decades.  Having developed a strong spiritual life, she reassessed with gratitude the fortunate circumstances and beautiful places she has known.

As she revisited her hospitals, and recounted her numerous summertime surgeries, her split sized orthopedic shoes, crutches, and unwanted leg braces, she also described sunshiny childhood memories on the family farm…

“Despite the crutches, I was still able to get to the top of the corn crib, which was where we had a playhouse. We would build all our furniture and cupboards out of wooden peach crates left from my mother’s  canning. Climbing up wasn’t very easy, but my arms were strong, and the slivers I got in my knees as I pulled myself up were easy to get out. What fun we had!”

Then moving forward, as we all do somehow, she described pulling herself through adolescence and up into adulthood.   She worked hard, went to school, established a career as a helping professional, married, taught her kids to always do well at whatever they tried, and now in her sixties, is quoted as saying, “busy people always have time to help out.” Today Linda visits classrooms of elementary school children and is an invited speaker at community meetings. She wants to provide support, encouragement and a little enlightenment about life’s possibilities. She shares the “Four P’s” which are her personal guidelines for weaving a rich and colorful life:

Prayer, Prioritizing, Patience, and Persisting

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1. “Each day must start with time for PRAYER using my Thomas Kinkade devotional book and having my first cup of coffee.” Her daily readings are from Beside Still Waters, published by Thomas Nelson in 1994. “It has the most beautiful pictures on every page.”  She also reads Seasons of Light  and Beyond the Garden Gate. “Any one of these books I can pick up and read and feel so relaxed from the words and from the paintings I find there.”

Click here to find Thomas Kinkade’s devotionals on Amazon

2. PRIORITIZING  is very important for me as I always want to accomplish more than I should. Planning to do the things that must be done is necessary and then I can look ahead if my mind and body agree on doing more.

3. Next is PATIENCE as I [carefully place and strap] my long left leg brace [on my leg] so that I will be able to walk. 

4. PERSISTING is just sticking with the project until it is completed.

Poliomyelitis, at a very young age, is the reason for all these “P’s.” I stay focused on them all day through, and with God’s guidance my days are wonderfully full. It is important to me that I live my life as a canvas, putting all the color I can into it.

Actually, I think Linda might want to incorporate a “Fifth P” into her schema that can be seen as a metaphor for what she is doing these days as a woman who had polio and has made life work.

That obvious “P” to me would be her productive, passionate and pleasurable post-polio pastime: Patchwork Quilting!  She even says, “My favorite pastime is quilting– putting those pieces together to blend and make a most beautiful piece of art. It is like…. all the happiness and goodness…in my life.

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“I weave in faith, and God finds the threads.” –Linda L. Christianson

 

Linda welcomes your messages to exchange ideas about quilting or to discuss her book about growing up with polio in rural Minnesota. To connect, send a message through her Facebook page.  Or use this email address: llcallthesteps@gofast.am

If you would like to have a copy of Linda’s 93-page chronicle for your personal library, here’s how–click on the picture below…


P.S.  Have you written a book?  If you would like to have it showcased on this blog, please contact me at sunnyrollerblog@gmail.com.


Have you ever thought about the major turning points in your life with polio?

What kept you going?

Ever considered writing a personal memoir describing your life experiences–for your children and grandchildren to read and treasure as they focus on living their lives successfully?  Bet you’d have some great ideas for them.


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Fire Mountain Gems and Beads

Online Fabric Patterning with Wax Resist Class

Working on Wisdom

When I was a little girl, my German-American father used to sternly instruct, “Respect your elders!” It was usually when he wanted us kids to shape up and do what he said.

Now 60 years later, I have learned that his classic instruction remains in my heart and has burgeoned into a life lesson–bestowing much greater meaning. What I never knew at the age of seven was that as a mature woman, I would long to respect my elders…to seek them out and learn from them.

There was a wonderful advertisement on the Super Bowl last weekend. Did you see it? It was a Dodge commercial featuring a fervent group of expressive centenarians.  At the age of 100, each one had words of wisdom for us youngsters about how to live life successfully.

Have a look…

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I love that by way of this commercial, millions of children, teenagers and adults were suddenly impelled for one brief moment to think about the wisdom of our elders. And then the next night, that one commercial, out of all the rest, was spotlighted on ABC’s “World News Tonight.”

It’s even more interesting to note that in our 2007 study (See Wise Elder Report above) of 15 much younger “wise elders” in their 60s, 70s, and 80s, (individuals deemed as role models for aging well by their post-polio support group members) much of the same truth came out.

The younger post-polio wise elders agreed with the Super Bowl centenarians!

Here are three of their parallel ideas:

The Dodge centenarians said:  “Live for now because life is good. You make it good.”

The post-polio wise elders said:  It is essential to enjoy life and have fun. After working very hard earlier in life to achieve and achieve well, retirement emerged as a time to simply enjoy life more.  Employing a sense of humor was also designated to be important for coping well. “Laugh at yourself a lot; become a fun-loving mentor for others,” one person recommended.  “Take your scooter and be where you want to be—never feel like you are in the way,” another elder directed. An attractive former college English professor and now a prize-winning gardener and public speaker went on to say, “If you are paralyzed by polio, don’t be doubly paralyzed by life!” Further, another post-polio wise elder amicably advised, “when in doubt, go out for pizza!”

For me today, that means I will enthusiastically work to earn and save enough extra money so I can rent that big ground-grabber scooter and reserve that cozy wheelchair-accessible hotel room–as I joyfully anticipate making a summer trip to Colorado.  Woohoo!  Mountains, flowers, friends and wild gnarly animals–here I come in August! 

The centenarian said, “Don’t complain. Don’t bitch.”

The post-polio wise elders emphasized the importance of having a positive attitude.  Many believed that being optimistic got them through life and continues to do so. Two believed that they were born with a genetic leaning toward optimism. Another reflected that her original rehabilitation experience had encouraged an attitude of hope. Feeling self-pity was not an option during childhood rehabilitation and was ill- advised for late life. Comments noted were: “Make the best of things”, “Stay upbeat about life,” “Dwell on the good memories in life;” “Focus on life’s beauties that you appreciate.” Conversely, they warned against the negative: “Don’t dwell on the negative,” “Don’t hang around negative people,” and “Don’t get stuck in depression and complaining.”

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If I want to apply those words of wisdom today, instead of obsessing about my lethargic cabin fever blahs this week, after a huge snowstorm in Michigan, I will be grateful for not getting scooter-stuck in 19 inches of snow outside my door! And try hard to remember that, “Spring always comes.”  Gotta lighten up!

 

 

The Super Bowl centenarian said, “Tell the truth. Tell it like it is.”

The post-polio elders said,  “Be real,” and “Don’t do denial,” and “Accept new limitations.”  This call to truthfulness was expressed in a variety of ways:  “I say do what you can and that’s it.  I have to accept what I can do and know what I cannot do.” “It’s much better to set your own parameters than for someone else to do it.” “Take the message from ‘The Gambler’ song– know when to hold ’em; know when to fold ’em...” Accepting both early and new disability-related physical/medical characteristics was deemed to be foremost in importance. Fully accepting life and one’s self was an important coping strategy that has been adopted by the post-polio wise elders.

For me, that means not denying, but fully accepting and  ‘fessing up that using a wheelchair full time really requires a committed change in eating and exercise habits to stay healthy.  And that it’s important to reach out for help when it comes to such tough adaptations. Hmm…maybe I need a personal trainer.

Several of the wise elders whom I interviewed have now passed away; most have not. May I take this opportunity to thank them all, along with the Dodge centenarians, for teaching us more about living well as we age–with or without a disability.  May we continue to listen, learn and, as my Dad directed, respect our elders!

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Honor and Blessings to Our Post-Polio Wise Elders

 

P.S.    I hereby fully admit that I remain just a “wise elder-in-training.” It seems that every day I earnestly and openly search for new wisdom. As I seek out my favorite role models and look to their advice, I am also beginning to realize that my job is to ultimately become my own “number one wise elder.”

I have found, however, that the journey for that optimumSalzburg shops 1 truth is an imperfect, often rocky pilgrimage.  It’s ever-changing, messy; filled with trial and error, discouragement, elation.  It can be so ego-disheveling, but bit-by-bit, it also can be lovely and peace-producing.  I guess the best I can do, along with contemplating the advice of others, is to continue to listen to the soft voice deep within me–then really trust it. You?

 

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Do you have a personally-learned tidbit of wisdom to share with us here? Something that really works for you?

Do you have your own personal wise elder–post-polio or not–a role model for growing older gracefully with a post-polio disability ?

Who might he or she be?

What have you learned from them?

What might they teach all of us?

Would love to hear your thoughts by way of the comment section below…

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Follow this link to find more about … Wisdom

A Couple More Thoughts on Spirituality and Disability

“Pain Passes. Love lasts a lifetime.” (anonymous)

Quite often during my lifetime with a socially-obvious disability from polio, I DSC04588 thotshave lived as a human optical illusion.  Visually, I unintentionally convey a false impression to those who first see me. I am not always what I seem to be.

How many times have you seen strangers look at you with great pity in their eyes?  Or say things like, “You poor dear, it must be horrible to be confined to a wheelchair.”  How many times have you encountered misguided religious zealots in shopping malls who want to convert you and heal you on the spot because they assume you are weak and pathetic? Once, an old drunk stumbled up to me on the street. Singling me out, he handed me 35 cents in nickles and pennies and said, “here girl, you need this more than me,” then staggered away. I was 14 and with a bunch of suddenly dumbstruck teenage friends. So much for fitting in.

Ouch! That kind of stuff is painful.  Heavy sigh…guess I’ll never be good at making great first impressions.

I believe that those crazy encounters are generated by well-meaning, but sorely limited people, who see life mostly on a physical plane. They are the self-called realists who connect disability to discontent and human deficiency. They are the people who don’t really know us.

But what is it, exactly, that they don’t get?

Plenty!

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Personal Reflection Number One…

They don’t get that as we polio survivors grow older and wiser (see The Wise Elder Report above) with our disability, most of us have built strong social support networks. As Maya Angelou said, we have learned that “love saves us.” We enjoy life. We tap into being optimistic and have grown into greater, deeper self-acceptance. We have learned to use our assertiveness skills to our advantage and are well-educated. Finally, we are often spiritually tuned into powerful unseen dimensions because, thankfully, our disability has taken us there. And, for me, that last point is huge.

I believe that each of us has deep inside, a divine spark. It is a glimmer of God, a radiance and purity that longs to be affirmed. It is also a glimmer of God that affirms us and keeps us strong when we tap into it.

“Pain passes.  Love lasts a lifetime…”    I say, (stomp! stomp!) forgive and forget the pain, the false assumptions, the heartbreak, the goofy statements. Dwell in the love!  It works better!

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Personal Reflection Number Two...

But how do we tap into our spirituality? There are so many avenues. For starters, here are three simple ways I’ve used to connect with my spiritual self:

1. Meditate. Meditation is a mental exercise designed to bring about a heightened level of spiritual awareness and trigger a spiritual or religious experience.

Living alone and being semi-retired, I have extra time these days to sit quietly and meditate in the morning, which I love. Polio has relentlessly requested that I become more sedentary than ever, which I fought at first, but have found has at least one hidden advantage. I can relax and take time to focus on the positive–in the here and now. When I focus on the life force inside me, I find the experience to be renewing and calming. It also fills my brain with delightful and surprising new insights and ideas. So, the experience I am describing is–being still, and then calling upon God to be with me in the present moment. The experience soon turns into a two-way prayer.

Intrigued? Ready to learn more about this ancient practice now embraced as good for people of all ages in our nerve-racked culture? There are lots of good books out there on meditating. Check out this Amazon link: books on meditation Anyone have a favorite reference on meditation to recommend to others? 

2. Stay home or get together at a friend’s place and watch inspiring programs on television like the Super Soul Sunday shows that Oprah presents on her OWN TV channel, Sunday mornings. A wide range of fascinating guest speakers discuss matters of the soul with Oprah Winfrey. These guided conversations can be fun to tape and watch throughout the week, as well. She also has an appealing Facebook page you might want to check out.

3. Join kindred spirits at your chosen house of worship. For me, my spirituality and my religion are great equalizers. At church we are more than our physical bodies; we have a spirit to share and we share the Holy Spirit. Many of us need that social connection and that spirit connection to get through everyday life.

When I was a younger woman living with polio, I had several personal experiences with my church friends that were transforming. I call them “feeling the presence of God” or “Holy Spirit moments.”  Like the time I was sitting in my girlfriend’s big country kitchen with her. It was Christmas time and we were anxiously struggling to resolve some big life issue. Christmas carols softly filled the room with angelic melodies. The aroma of cinnamon potpourri simmering on the nearby stove calmed our senses. Her Christmas tree sparkled from the next room.  Suddenly she looked across the room and softly affirmed, “God is here with us.” Surprised, I stopped chattering. She was right. I felt engulfed by a mysterious sweet and calm presence. And in that moment we both knew everything we communally worried about that day would be okay. And it was.

And those are just a few ways to connect with our wonderful spirit within–with a vigorous, compassionate love–that certainly surpasses all pain.

sunn rAfter working my way to the ending of this post, all I can conclude at this moment is, “in the grand scheme of things, who cares that much about first impressions anyway!?”  

Being underestimated can actually be fun at times. It has given me many convenient chances to surprise–even stun people–in all kinds of positive ways.

And woohoo!    

That is rewarding–for everybody.

 

Onward and upward!

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What inspires you?

What might be some simple ways you have tapped into the spiritual part of yourself?

Sharing one idea here may help someone out there re-connect with the light inside themselves…

 

–Special thanks to my young friend, Catharina Rink, for sharing her recent photos (above) of Australian seascapes, as she is on an adventure and pilgrimage to discover the wonders of that vast country this year.   Currently in Melbourne.  Next stop: New Zealand!–

–Also many thanks to Catharina’s brother, Sebastian, who took the two photos of me at a favorite coffee shop while in Germany. Sebastian celebrates his 16th birthday this week! Vielen Dank, Herr Rink and alles gute zum geburtstag!–

 

P.S. If you enjoyed reading this article, you may want to subscribe–free of charge–to receive an email every 10 days or so, announcing the latest post. Just go to the right sidebar here to sign up.  Enjoy!

 

 

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A Couple of Thoughts on Spirituality and Disability

Well, New Year’s Eve has come and gone and January rouses me into wintertime musings about life-Sun on river 22-past and present–as I begin to clarify my still-nebulous resolutions for the year ahead.

As imbibing in the spirits helped many of us ring in 2015, another kind of spirit comes into focus for me–a more important one–my spirit. Better said, my spirituality. It’s what gives me guidance and gets me through.

Spirituality: “the core part of us that gives us the power to transcend any experience at hand and seek meaning and purpose, to have faith, to love, to forgive, to pray, to meditate, to worship and see beyond the physical here and now. Spirituality is the inner force that animates human life.”

As we grow older, it seems that we have more life losses to grieve and be sad about. We are losing physical prowess, friends, lovers, family members and familiar things, like paper books, hand-written letters in the mail, even fun stuff like funny comic books, drive-in restaurants and movies.

But may we console ourselves with the simple, but profound truth that grief and happiness can gracefully exist side-by-side in our hearts.

I believe that as we grieve the very gradual loss of our physical abilities, we can increase the power of our spirits in new and exciting ways.

Personally cultivating our spirituality can not only have a positive and powerful effect on our own strength and energy, but also on the health and well-being of many people around us.

Here are a couple of personal reflections I’ve had along my spiritual way. Do either of them ring true for you?

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Personal Reflection Number One…

So many of us were told as youngsters that we had to depend on our brain to get us through life with an unusual body that was partially paralyzed. “Be smart, clever and well-educated and you will show people you can fit in.” 

But there was another important piece. Body and mind are interlaced with our spirit to make us complete. Some even say that we are all spirits on earth who just happen to have a body. And that spiritual transcendence can help us face our physical differences and challenges “with a clearer perspective, rising above the limits and pain initially imposed by the disability.”

As a person who has been living with a post-polio disability for sixty-two years now, my spirituality has helped me make sense of being unusual, physically. God works in unexpected ways, at surprising times and through unique people like you and me.

 

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Personal Reflection Number Two…

We have the power to effortlessly transfuse other souls on earth with enthusiasm and assurance. I really believe that we who have a socially- obvious disability with braces, crutches, wheelchairs, and a variety of physical differences have been put on a stage in this “theater of life.”

Like it or not, people notice us. People look at us. People even stare at us. And that has given us an automatic power to influence others in positive ways.

Being a person with a disability who genuinely emanates spiritual peace can have an amazing effect on so many people around us. How many times have you heard people say “you are such an inspiration to me?” Spiritual meditation can bring us a peaceful heart. That serenity in our eyes and in our overall countenance, surrounded by our appliances and asymmetries, automatically gives hope to those who are seeking inspiration.

Did you see the woman on Dancing with the Stars last year who came in second dancing on two prostheses? The power of her positive influence in America and around the world is huge. She has no idea.

And neither do we. We can and have been influencing the human condition on earth as we have transcended and transformed our polio-caused disability from weakness into strength.

When you think of it, there is great irony in knowing that because we have lost muscle power, we have the potential to give muscle, vitality and strength to the world and we don’t even have to say a word.

First and foremost, we simply have to be present among our fellow human beings. That’s it. Just show up. Just be there, among people. All the rest that we choose to do–like speaking, writing, listening, leading, following, praying for people, contributing through our work or our family jobs or a hundred other roles we may play—all of that is simply what we do. But what about the spirit driving all that activity? How does the divinity of our inner spirit inform our activity?

As I write this blog post, my first 2015 resolution is slowly emerging into crystal clarity.  I want to tap into my spirituality every single day this year…because I really, really, really respect and like my spirit. I will ask spirit every morning to lead me through the activities of that new day.

Okay spirit, I’m ready. What will happen? This is exciting.

 

4ec810a01e1d6PICT0016_large_medium 1Wishing you an enthusiastic year ahead.……….

 

Did any of these personal reflections on spirituality resonate with you?

Sharing your unique personal insights here might help enlighten someone who is earnestly searching for his or her own spiritual answers…

 

 

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Let’s Clink Our Champagne Glasses!

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“Hip, Hip, Hurrah!” 1888, oil on canvas by Norwegian-Danish painter Peder Severin Krøyer

 

“We must see the delicious beverage, then taste the lovely wine,  feel it on our tongue, smell the sweet aroma from the glass. Lastly, we need to use our fifth sense so we “clink” the glasses and hear the delightful sound…”

 

It’s time for us to have a wonderful party—a celebratory bash–to raise our glasses and communally toast having had polio. Three cheers for polio! We will clink together; then we will drink together!

What! Salute having had polio? Sound crazy? Maybe, but let’s think about it. One of the smartest and healthiest things we might do at this time in our lives is to celebrate the gifts that polio actually gave us—the many wonderful life moments that happened to us BECAUSE we had polio, not IN SPITE OF having had polio.

This is a controversial, highly-charged topic because having had polio was not easy. But for the sake of debate, let’s take a moment to broaden our thinking patterns here beyond the borders of “not easy.” Let us invoke a little more expansive view of our lives, especially when it comes to renewing our personal sense of meaning. Yes, yes. We all want to see polio eradicated worldwide because it kills and paralyzes people. No. No. We would never wish a post-polio disability on anyone, nor, if we could live life over, would we ever ask to have it again. However…we got it, were disabled by it, suffered and struggled with it, and have been mastering the art of living well with it for decades now.

Looking back, we know it’s true–a growing number of us have consciously turned living well with polio into, not just a goal, but a creative art form. We have not only been the adroit composers of our unique personal adaptations, attitudes, and alliances; we have become the masterpieces themselves. And we flourish.

I believe one of our secrets to thriving with polio is that we, first and foremost, quietly dismissed all those who gawked at us with pity, volunteered to Biblically heal us, needlessly tried to fix us, or gazed at our bent feet rather than into our eyes. As we have matured, we have learned to reject the shame and stigma of disability. What a freedom! We found out that such negativity gets old and is not useful. Out of necessity, we have had to become introspective from time to time, which inescapably fostered our personal character development. We have learned to be assertive when needed, to surround ourselves with loved ones, to think positively, get educated, find good resources, and enjoy life along the way.

Perhaps most importantly, we have learned to accept ourselves as we are. Many of us have evolved in our thinking to appreciate and lovingly embrace what used to be our primary nemesis–polio. In order to find peace and contentment, we have had to make friends with our disability. Not overcome it. Not hide it. And not fight it. Someone at the recent PHI Conference in St. Louis reflected, “Life doesn’t get easier, but it does get better.” Perhaps one reason life with polio is better is because we have become wise enough to embrace all of it—cause and effect. Polio has made us who we are today.

Our physical differences don’t matter much anymore because we are all beginning to look like everyone else our age anyway. We, however, know a bit more about aging gracefully, because we started sooner than all of our friends. We are aging with a disability. Many of our friends are aging into disability. If they’ll let us, we can actually help them with their new adjustments.

Our polio experience has given us everything from spontaneous moments of delight to life-long personal relationships we never would have had otherwise. Let’s take a long moment to praise, appreciate and clink our champagne glasses to all we have received, known and loved because of our polio…these have been polio’s gifts to us.

“What gifts,” you may ask, “did polio possibly give to me?” What is there to celebrate, to be grateful for? To open your thinking process, here is what a group of fellow polio survivors have shared from personal experience:

  • In 1964 I got to view Michelangelo’s Pieta at the New York World’s Fair for as long as I wanted to because people in wheelchairs were allowed to sit about 50 feet from the magnificently mesmerizing statue instead of having to stand on the conveyor belt being moved slowly past the statue. I could marvel at every fold in Mary’s gown carved from that huge hunk of white marble. (Clink!)
  • First, through all the wonderful polio survivors I have met, I have gained so much insight into life and all its inevitable ups and downs. Second, I have grown personally and I believe I have become much more sensitive to “the moment” and the value of self-reliance. These are blessings that came with polio. (Clink!)
  • I would never have been invited to travel to India to teach about the late effects of polio, ride an elephant and see the majestic Taj Mahal shine in the rain like a glazed luminescent pearl. (Clink!)
  • I don’t think I will ever be grateful for having had the disease. However, I am grateful for the opportunities that have come my way while dealing with the disability…the very special people I have met along my journey, the extraordinary experiences that I have encountered, and the drive I have developed to succeed in life. (Clink!)
  • I would not have met and married my husband if it hadn’t been for how struck he was by the contrast between my strong personality and my polio enhanced body with leg braces and a cane. I moved with effort due to my severe scoliosis, but stood proudly in a line of therapist colleagues introducing myself to lead a discussion group at a conference he was attending. He picked my discussion group and pursued my attention. Forty years later we still wonder how, of all the people in the world, we found each other and how good it still is. (Clink!)
  • A few years ago I had the opportunity to watch a superb young documentary filmmaker at work with her small crew, and to see how she turned much of what I said during a lengthy interview of more than an hour into images throughout the hour-long film. My voice was heard for no more than a couple of minutes but the film itself is crowded with images she found in the March of Dimes archives and other places – almost all of them completely unrelated to me personally, but some of which she spotted just by recalling our taped conversation. I learned a lot from this about the art of filmmaking. No doubt I could’ve learned roughly the same thing without the dubious benefit of having had polio. But in fact, in this case, the benefit arrived because of the polio. (Clink!)
  • Polio has given me the ability to view life and situations “outside of the box.”  This has enabled me to do the many, many challenging things that I have accomplished in ways that would not be typical for most people. (Clink!)
  • I learned to never feel sorry for myself; there are others worse off than me. (Clink!)
  • It has enabled me to relate to issues others with disabilities are facing. (Clink!)
  • I have met many wonderful, interesting people through my polio connections. Because of my polio, I have a worldwide network of supportive post-polio associates that I can link up with anytime. They are like “friends-on-call!” As a traveler, that’s an especially gratifying (and quite helpful) advantage. (Clink!)
  • If I hadn’t studied post-polio treatments in Europe, I would never have encountered a European lover who made me feel like Sophia Loren on a scooter. (Clink!)

 

Now it’s your turn. Lengthen the list and join the party.  It’s our time to celebrate!

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DSCN0918Holiday Blessings!

This essay was recently published in the Fall 2014 issue of Post-Polio Health, Post-Polio Health International’s newsletter.

It might be a great piece to read aloud in your favorite circle of friends who had polio.  After the reading,  any inspired group members could verbalize their own personal “gratitude toast” to inaugurate a cheery exchange.

To be exquisitely festive, do plan to have several bottles of excellent champagne on hand!

Blessed is the season
which engages the whole world
in a conspiracy of love.
             ~ Hamilton Wright Mabie ~

 

Clink!

Sunny

 

Whispered Messages From “The Afters”

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“The artist gazes upon a reality and creates his own impression.  

The viewer gazes upon the impression and creates his own reality.”

~Robert Brault

 

Recently, I was introduced to the work of Fran Henke, an Australian artist, writer and  polio survivor who has re-envisioned three famous works of Degas, Modigliani and Rembrandt.  Her series of paintings is called “The Afters.” It is an evocative trio of take-offs prompting the viewer to contemplate… after what? After whom?

For me, The Afters somehow emotes an ethereal spirit that whispers messages about the essence of women in our culture and then more specifically about the evolving social acceptance of women who have a disability. “Beauty is,”  indeed,  “in the eye of the beholder.”  Or is it intrinsic?  What is beauty, anyway?

Look for the braces and wheelchair.  Listen for the whispered messages…

 Recently Updated ballerina

Left: “Little Dancer Aged Fourteen”; Edgar Degas; 1881. Right: “After Degas’ Little Dancer”; Fran Henke, 2014.

 

Modigliani collage 2

Left: “Seated Woman Weared In Blue Blouse”; Amedeo Modigliani, 1919. Right: “After Modigliani’s Seated Woman”; Fran Henke, 2014.

 

Recently Updated1

Left: “A Woman Bathing in a Stream”; Rembrandt, 1654. Right: “After Rembrandt’s Woman Bathing in a Stream/Selfie”; Fran Henke, 2014.

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As a viewer, what is your reflection about these before-then-after works of art?

What might the artist be saying about 21st century Western society’s view of women who have a disability?

 

 

fairy

What whispered messages do you hear from The Afters?

 

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About the Artist

Fran Henke is a busy Australian artist. She had polio in 1943, an isolated case in a small country town. At the time she was Fran Henkequarantined and felt fortunate not to be sent to Melbourne’s big hospital. Living with a post-polio disability, she read a lot as a child, and grew up wanting to become a career writer. The only way to do that and earn a living in those days was to be a journalist, so she did. Fran specialized in reporting about books and the arts. After 50 years, she retired as a journalist in Australia and overseas, and now lives in an industrial port town, on the Mornington Peninsula in South East Victoria. Upon retirement, Fran was able to go to art school and to write books, including artists’ books (see  Smithsonian blog for a definition).

She also decided that since she had strong communication skills, she should use those skills to benefit people who also had polio. During the past 15 years, she has energetically campaigned for meeting the needs of polio survivors in Australia and worldwide.

Fran relates, “this Afters series came out of my belief that art needs to say something. When a U.S. polio survivor mentioned her discomfort at a Modigliani lady’s skirt length… I repainted Modigliani!”   She lengthened the skirt, gave the chair wheels and the lady, leg braces. This year she has continued to revise and provide re-interpretation of beautiful women painted by the great Masters, Degas and Rembrandt.  Ms. Henke has provided us with new, fascinating portraits.

Fran has worked with Redbubble, which is a Melbourne-based online marketplace for print-on-demand products based on user- submitted artwork. She also has her own website with full contact details: www.franhenke.com

Thank you, Fran.

________________________________________________________________

 

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“Phoenix Rising” — Lauro S. Halstead, M.D., Shares A Personal Story

The bus took us up above the tree line to an altitude of 7500 feet. This was the last stop for people who wanted to climb Mount mtfujiFuji. Looking up at the snowcapped peak almost a mile above my head, I felt a cold chill of fear. “What am I getting into?” I asked myself. It was the last day of July 1957 and I was about to climb Fuji with Akira, a Japanese friend from college.

“I’m worried about my legs,” I said to Akira. “They feel strong but it’s a long way to the top.” I was in Japan on a travel fellowship to participate in a summer work-study program near Tokyo.
“Don’t worry,” he said. “We’ll go slow and easy, all the way up.” Akira knew about long climbs. As a child growing up in Tokyo during the war, he survived on a starvation diet and witnessed firebombing that destroyed houses in his neighborhood. At college, many mistook his Japanese reserve for indolence but Akira was probably the smartest student in our class and eventually won the top prizes in history and mathematics senior year. Before starting graduate school, he had returned to Japan to visit his family for the first time in four years.
“I don’t think I slept very well,” I told him. “I guess I’m pretty excited.” I may have been excited, but the truth was I was scared. When I woke up that morning, my legs were aching and my forehead was hot. Was I getting sick again? Three years earlier on August 1, 1954, while hitchhiking in Europe, I contracted polio in Madrid. It took six months before I could walk without braces. Although the doctors said I made a good recovery, how did they know how strong I was? I had never faced a challenge like climbing Fuji.
japan mapAkira and I were roommates for two years at Haverford, a small, liberal arts Quaker college outside of Philadelphia. Over the years, we spent a lot of time talking about life in Japan and possibly going there together after graduation.
“I’d like to show you all my favorite places,” he said one day during sophomore year. We were looking at one of his family albums full of grainy black and white photographs. “My parents would love to have you stay with us. You would bring great honor on our house.” It was an invitation that blended traditional Japanese humility and respect in equal measure. I, of course, wanted to take him up on his offer. Traveling to foreign lands seemed to be in my DNA.
“Something I always wanted to do was climb Mount Fuji,” Akira said as he pointed to a picture of the mountain he had taken from the roof of his parents’ home near Tokyo. It was majestic, even serene, and looked impossibly high. “If you think you’re strong enough, we can climb it together.”
At 12,388 feet, Mount Fuji is the tallest mountain and most sacred place in Japan. Many Japanese try to climb it at least once in their lifetime. For those who have never climbed Fuji, it is not as difficult as one might imagine. True, it is over 12,000 feet tall and is snow-capped most of the year, but there are no sheer cliffs or need to rappel. Instead, there is a well-worn, winding footpath that takes you back and forth toward the top. Although experienced climbers easily make it to the top in 6 to 8 hours, novices are told to take frequent breaks and allow at least 12 hours.
So here we were, two novices beginning our slow ascent. By starting at four in the afternoon, our goal was to reach the summit in time for sunrise just after 4:30 a.m.
As we climbed past the 8000 foot marker, I became aware that climbing Mount Fuji was a kind of religious experience. For many Japanese, this was their equivalent of Mecca and at the summit there was a temple to one of the Shinto gods. Looking Hiroshige,_Sugura_street 1around me, I could see hundreds, maybe thousands, of individuals who formed a flowing column of humanity that moved slowly, implacably upward towards the heavens. The vast majority were elderly Japanese, many bent over with age or some infirmity, who were making the pilgrimage of a lifetime: perhaps for spiritual cleansing, perhaps for physical healing. I tried to feel their energy and let myself be carried along by their strength.
Somewhere near 9000 feet, my breathing became more labored and I realized my body was struggling to get more oxygen. During polio in 1954, my respiratory muscles gave out and an artificial ventilator eventually saved my life.
“What. If. Can’t. Breathe?” I gasped. My head was spinning. “Akira. What. To. Do?” There was no answer. He wasn’t next to me anymore. Then I saw his red plaid shirt up ahead in a small group of people looking at something on the ground. A short time later, two men came hurrying down the narrow mountain path carrying a stretcher. On it was a Japanese man, not much older than I, who was pale and lying very still. Someone standing near me whispered, “Heart attack. Happens all the time.” Was this some kind of omen? I bent over, clutching my own chest, gasping for air. The tips of my fingers were tingling.

An elderly Japanese woman saw my distress and said with a gentle smile across empty gums, “No breathe fast.”

It was a simple gesture but reminded me of my stay as an honored guest in Akira’s home a few weeks earlier. Although his parents had been educated in Europe, they observed time honored cultural roles in their personal lives. His mother cooked while kneeling on the floor of a tiny kitchen and only ate after the men were finished. There was a small wooden tub used for baths which was filled once each night. As the honored guest, I was allowed to use it first when the water was still boiling hot. Then it was Akira’s turn followed by his father, his mother, and finally his elderly grandmother.

At 10,000 feet, the path became suddenly steeper and there was a sharp drop in the temperature. Fuji is an inactive volcano but small chunks of brown volcanic rock were everywhere along the path. There were rumors about people slipping on this rock and disappearing over the edge. Akira and I slowed our pace and took rest breaks every 30 or 40 feet. With every step, my legs felt heavier.

“This is tougher than I thought,” I said to Akira. We were in the middle of a thick band of clouds which blocked our vision and sprayed us with a fine mist. I was getting discouraged and my knees hurt.

“You go ahead and I’ll wait for you here.”

“Not a chance. We’re going to make it together.”

He was showing a resiliency that was usually hidden. Until now I hadn’t thought much about his struggles as a foreigner and his rise to the top of our college class. Meanwhile, none of the elderly Japanese around us seemed to notice the steeper climb. Or the colder temperature and the thinning air. Their perseverance gave both of us the courage to push on.

Earlier in the summer, I had learned a lot about Japanese perseverance. “Where’s all the destruction from the war?” I asked Akira as we rode in a taxi around Tokyo on my first day in Japan. ”It’s completely different than I expected. The streets are crowded with cars, people are well-dressed and there are construction cranes everywhere.”

It was true. The country was in the middle of the Japanese miracle. There were scars from the war, to be sure, but they were not readily visible to an outsider’s eye. Japan was making an extraordinary and largely unexpected recovery from the greatest catastrophe in its thousand year history. “Phoenix rising from the ashes,” was the way one newspaper headline put it.

When we reached 10,500 feet, I began to hear a low pitch sound. Was it the wind? No, it was some kind of music. Humming perhaps.fuji

“Do you hear that?” I asked Akira who was close by. I was panting and wasn’t sure he heard me. As I listened more carefully, it sounded like a religious chant.

“They’re Shintoists,” he said. “They’re trying to communicate with their ancestors. They’re also praying for strength to make it safely to the top.” The chanting and relentless determination of the hundreds of pilgrims around us stirred my soul. Truly, this mountain was inhabited by powerful and ancient gods. I took a deep breath.  My legs felt lighter and the cold air refreshed my face.

When we reached 11,000 feet, we had been climbing in the dark for several hours. It was nearly 1 AM and we were finally above the clouds. 1000 feet and three more hours to go if we were to make it to the top by sunrise. In the dark, people were carrying lanterns or flashlights. Looking back down the mountain, I could see this long, winding string of blinking lights, zig zagging back and forth that disappeared into the clouds below. Now we were taking rest breaks every 10 or 15 feet. I looked at Akira who was panting worse than I was.

At 11,500 feet I entered a state of oblivion. Maybe it was the muscle pain or lack of sleep. People told me later I was probably suffering from altitude sickness. All I know is I don’t have any clear memory of what happened. Akira said we just kept at it, one heavy step in front of the other, over and over.

Then, there we were. I was standing on the summit next to the Shinto shrine trying to make a snowball. To the east a faint light was moving up the valley that stretched out far below. Tokyo was at the edge of the horizon. It was hard to believe that this peaceful scene was the site of so much destruction only 12 years before.

“We made it! We made it!” I shouted in a low whisper, exhausted and dazed. “I could never have done it without you.”

We hugged as much for each other’s warmth as for joy.

“What day is it today?” I was having trouble thinking clearly.

“August 1,” he said.

“August 1, 1957,” I said, trying to calculate. Then it hit me. “Today is exactly three years to the day since I got sick with polio.”

With tears of joy, I lifted my eyes to the heavens.

It had been a long journey from Madrid to the top of Mount Fuji.

As I stood there watching the sunrise…

I tried to imagine what other mountains might lie ahead.

sunrise fuji

 


About the Author 

halsteadLauro Halstead, MD, MPH is a physician with over 40 years of experience in rehabilitation medicine. He has a background in internal medicine, international medicine, spinal cord injury, sexuality, disability and the late effects of polio. His practice currently focuses on working with older individuals with physical limitations or disabilities.

Dr. Halstead has a medical degree from the University of Rochester, Rochester, New York and a master of public health degree (MPH) from Harvard University. He was on the full time faculties at the University of Rochester School of Medicine and at Baylor College of Medicine, Houston, Texas for 20 years. For the past 26 years, Dr. Halstead practiced at the MedStar National Rehabilitation Hospital in Washington, DC. Currently, he is a Professor in the Department of Rehabilitation Medicine at the MedStar Georgetown University Medical Center.

Dr. Halstead’s research and publications have contributed to a number of areas including the philosophy of medicine, sexuality, medical education, spinal cord injury and for the last three decades, the late effects of polio and living with polio. He is recognized as an international authority about post-polio syndrome.

Dr. Halstead contracted polio at age 18 and currently uses a motorized scooter for long distances. Before medical school he lived in Rome for a year where he studied Italian literature. Since then he has had a life-long passion for Italian art, culture and language.

Click here to Learn more about Dr. Halstead at his website

 Thank you Dr. Halstead for your many years of

passionate commitment to the post-polio population. 


And …

Happy TX

Did you enjoy this post?

What are your thoughts?  

Any reflections to share?

 

This Just In…Prepare Yourself…

This is the 21st century. Is polio still “a curse of God?”  Really?  This article was recently published to raise awareness. It’s important to share.  

Ugh! If indeed everyone in the universe is connected, these women ARE you and me…


Wed for Wombs, Polio Wives Show India Fails Its Weakest

By Ketaki Gokhale – Nov 4, 2014

 

download INDIA

India

From a distance, Kausalya Devi looks like most rural housewives in India — she is squatting on the ground, bent intently over dirty vessels. As you come closer, you see the 20-year-old can’t do much more than crouch: her legs are short, limp appendages, crippled by childhood polio.

The mother of a 2-year-old son, Kausalya can’t move on her own and must be carried by family members. A month ago, she lost her second child, a baby born two months early after local hospitals struggled to give her the medical care she needed.

In rural India, where marriage is often a business transaction involving dowries, young women with disabilities are married off into the poorest families. Women who can’t labor in the fields are expected to bear children and end up in a government health system that is ill-equipped to treat them. Others end up with husbands who demand a steady stream of financial payments or even property from their families.

“Poverty in this part of Uttar Pradesh is a big problem — when these men marry a polio survivor it is because they are too poor to get a normal wife,” said I.S. Tomer, a physician and the mayor of one district in the northern state. “Honestly, if somebody is marrying a girl who is polio-affected, he’s marrying for the sole purpose of having children for his family.”

Most Vulnerable

While India has had no new cases of the polio virus for the last three years due to massive vaccination programs, it is struggling to protect the victims of previous epidemics. The World Bank says the country has as many as 90 million people living with disabilities, including those caused by polio — most of whom endure discrimination, barriers to employment, poverty and violence.

A 2005 study of disabled women in the eastern state of Orissa found that a quarter of women with mental disabilities and 13 percent with visual, hearing and physical disabilities — such as those caused by polio — reported having been raped.ibm3oihOWvgw 1

The share of disabled children who are out of school is around five and a half times the general rate, according to the World Bank report from 2009.

There are no reliable statistics on how many people in India live today with polio. The number could be large because the country once accounted for more than half the world’s infections and had  150,000 cases as recently as 1985.

Global Emergency
The polio virus, an infectious disease that is spread through contact with feces or droplets from a sneeze, attacks the nervous system and can cause paralysis within hours. It kills as many as 10 percent of its victims.

 

india 1Once almost driven to the brink of eradication, the disease is rearing its head again in the conflict zones of Pakistan, Cameroon and Syria, and the World Health Organization earlier this year declared it a global health emergency.

Nearly half the respondents in a 2005 AC Nielsen and World Bank study that surveyed more than 1,400 households in the Indian states of Uttar Pradesh and Tamil Nadu believed the disease was “a curse of God.” Almost half believed an adjustment in dowry was necessary if a disabled person married a non-disabled spouse. Women are among the worst hit.

“Polio-affected women mostly are married to people on their second marriages, or very poor families,” said Surabhi Shukla, a district coordinator for a United Nations Children’s Fund program that vaccinates children in Uttar Pradesh.

Every Girl’s Dream

In India, where the rich spend millions on lavish weddings and Bollywood films are centered on matrimony, having a spouse can translate into greater social acceptance and security.

“Every Indian girl dreams of getting married,” said Sandhya Jha, director of Shikhar Prashikshan Sansthan, a nonprofit that works in Kausalya’s district. “You have to look at the other side of this. For a girl who has had polio, the fact that somebody would accept her, that makes her very happy.”

 

India’s many online marriage sites allow users to search for physically handicapped partners, giving the disabled a shot at marriage. A nonprofit in the western Indian city of Udaipur conducts free “mass weddings” for young women and men with disabilities — mainly from polio. The aim of these weddings is to find partners for low-income people with disabilities, who ordinarily would be marginalized in Indian society.

“Marriage means a lot for a girl — even a girl who is not disabled,” said Ravish Kavdia, a spokesman for the group, Narayan Seva Sansthan. “In rural villages, after a certain age, it’s hard for the family as well as the concerned person to live in the society freely if they are not married.”

Polio Outbreak

For Manisha Wagh, getting married at 19 to an unemployed cable repairman was anything but a silver bullet.

She was one of seven children who contracted polio in the densely packed tenement in northern  Mumbai where she grew up. One night in 1984, 3-year-old Wagh came down with a high fever and by the next day, paralysis had set in.

Although she was one of the lucky ones who didn’t lose her mobility, the virus left her permanently disabled — she keeps her underdeveloped left leg pressed with her hand as she walks to keep it from buckling under her.

“He was introduced to us by a relative,” she said of her former husband. He wasn’t disabled, and her mother agreed to the match.iwsuR.GJkKzc 1

New Rickshaw

It became clear soon that the proposal came with strings attached. For marrying a disabled girl, he expected to be compensated, Wagh said. He quit his job three months after their wedding, and asked Wagh’s mother to buy him an 180,000 rupee ($2,900) rickshaw. She refused. Financial desperation, worsened by the addition of a baby, made Wagh look for work. She found a job in data entry at a chemical company that paid 12,000 rupees a month and eventually divorced her husband. Her mother let her come home. “She feels bad because she married my sisters to good people, but made a wrong decision in my case,” Wagh said. Now she is remarried to a man she grew up with, with whom she had a second baby girl a month ago. She knows she’s luckier than many women in India — for having a supportive mother, for being educated up to the 12th grade, for having job prospects, and, finally, for a second shot at marriage.

She was also lucky that her new husband, a rickshaw driver in Mumbai, could afford the 45,000 rupees it cost to deliver her second daughter by cesarean section at a reputable private hospital. She smiles as she talks about her new husband, Lalit. “He sees me as a normal person, not as somebody to get something out of.”

Child Birth

In Uttar Pradesh, the combination of poverty, disability and ill-equipped clinics had heart-breaking consequences for Kausalya. While female survivors of polio can have normal pregnancies and bear healthy children, they require more care during pregnancy and child birth. A 2007 study by researchers in Norway found they had more complications such as preeclampsia — a potentially fatal pregnancy condition characterized by high blood pressure, kidney damage and renal disease. They were three times as likely to have deliveries complicated by obstruction, and had higher rates of C-sections and stillbirths.

Decades after an infection, victims can develop post-polio syndrome, where muscles start further weakening. Polio survivors with paralyzed lower limbs in rural India or in urban slums often crawl or use their arms to drag themselves along the ground, without walking aids. Many young boys end up begging for money.

 

Blood Storage

The community health center Kausalya went to when she began feeling shooting pain in her womb, two months before her due date, didn’t have blood storage, Bloomberg News found on a visit there. It also didn’t have the ability to perform C-sections. R.P. Gupta, chief medical officer of Mirzapur district, didn’t immediately comment.

 

Kausalya was next referred to a government-run district hospital. There she waited for a day and was never seen by a doctor. Her pain continued, and her designated village health-care worker recommended she be taken to a private hospital about 40 kilometers (25 miles) away. There, Kausalya gave birth to a second baby boy by C-section. He lived for about 10 minutes.

India’s Persons with Disabilities Act — its main law for people with disabilities including those caused by polio — focuses mainly on prevention work such as vaccination, the World Bank says, and doesn’t make commitments for treatment and rehabilitation.

Boy Child

On a sultry afternoon in Kausalya’s village of Indiranagar, her father-in-law placed her on a cot so she could talk at eye level. Kausalya is a member of the Kol tribal community of northern India, which once relied on the forest for income — selling leaves and timber. In this district, members are now mostly landless agricultural laborers, and the family lives in a one-room mud home thatched with shingles and twigs.

Kausalya said she was feeling better, but her eyes were full of tears and face furrowed with worry. Her husband sat wordlessly, never addressing his wife. Her mother-in-law, Jashodhara Devi, was crying and angry that the family had lost a male child. “The baby boy is dead,” she said, again and again. “They killed our boy.”


To contact the reporter on this story: Ketaki Gokhale in Mumbai at kgokhale@bloomberg.net

To contact the editors responsible for this story: Anjali Cordeiro at acordeiro2@bloomberg.net; Brian Bremner at bbremner@bloomberg.net Crayton Harrison

To view this story online go to Women in India    ®2014 BLOOMBERG L.P. ALL RIGHTS RESERVED.


Calling upon our leaders…

images candle 1Judy Heumann, powerful international disability rights advocate, what can you tell us?

Margaret Nosek,  deeply respected national researcher on women with disabilities,  what are your thoughts on this situation?

Oprah, talk to us!

Deepak Chopra, what’s going on in India?

What would Eleanor Roosevelt have said?

Priests, Pastors, Rabbis, Elders will you please shine a light on this inhumanity?

Must having a post-polio disability still be “a curse of God?” Ugh!

What can WE do?

What do you think Post-Polio Health International could do to help? 

Words!

 
 
“Words! What power they hold. Once they have rooted in your psyche, it is difficult to escape them. Words can shape the future of a child and destroy the existence of an adult. Words are powerful. Be careful how you use them because once you have pronounced them, you cannot remove the scar they leave behind.”
― Vashti Quiroz-Vega

Disability language can be like an ever-changing wilderness of words. It keeps evolving and if we don’t keep up, we can get bewildered, lost, behind and off-track.

How do we talk about our d”isability? What do we silently say to ourselves, about ourselves?

Are we “polio victims,” “polios,”  people living with polio,” “polio survivors,”  or  “people who had polio?”

Are we “wheelchair users” or “wheelchair-bound?” Strong or weak?

How do we describe ourselves? Are we each a “handicapper” or a “person who has a disability?” Aren’t we first and foremost a human being with a mind, body and spirit; rather than a beggar with a “cap in hand” (hence the word, handicapper)?

In that light, should the signs read “handicapped parking” or perhaps be changed to “accessible parking?”

Consider this…changing our hearts can change our words and changing our words can change our hearts.

Hmmm…What words do our hearts tell us to articulate to the wide-eyed world around us? To the children in our lives? The shopkeepers? The gas station attendant? The cable guy? The health care professionals? The n ews reporters? What are we teaching? They will take our lead.

When we consider and choose what to say to others, the right words will almost always emerge  if we focus on our:

  • dignity
  • strength
  • personal power and
  • positive self-acceptance.

Words! Our diction sure makes a difference.  We have the power to help shape our own, and our culture’s, worldview–just by becoming keenly aware of the words we use in daily conversation. Further, when we couple our word choice with an appropriate tone of voice, we magnify our meanings and messages to each other.  So, of course, it’s not just what we say, it’s how we say it that can be so powerful.

 

“They can be like the sun, words. 
They can do for the heart what light can for a field.” 
                                                            ― Juan de la Cruz, The Poems of St. John of the Cross

sunintrees

 

We know that speaking and hearing them… writing and reading them… the right words can be such a nourishing source of light and life to all of us who continue to trek forward through what often may feel like an unpredictable wilderness of  the latest, most socially-acceptable terminology regarding disability.

In spite of the constant changes, I want to continue to be a positive influence on this earth. I’m ready to keep up with what’s new, what’s most relevant and what’s of greatest help.  You?

Have you seen the updated list of positive and objective language that is being used to describe all things disability?

Read the latest here: Your Words, Our Image 8th Ed.

 

Agree? Disagree? Neutral? Any thoughts on this topic?

Advice From a Beautiful, Healthy Friend

Ugh! Struggle…struggle…struggle. That’s me trying to lose weight. I have such a hard time with that. Recently I wrote to a slender gorgeous friend who has a post-polio disability and is a power wheelchair user. I asked her how she stays so slim. She shared her secrets. What do you think? What have you tried that worked? We need good ideas! 

Here’s what Linda writes…

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Oh, Sunny, where shall I begin?

10461966_10153083515964815_3582603946940855215_nI “work” on my weight 24/7 so have many various techniques. My program is post polio friendly; and as you know, I am a full-time powerchair user, so my weight program must be pretty much solely comprised of caloric restriction. Nevertheless, energy is important to polio survivors, so I do a number of things to keep my energy up. My nutrition heroes are Dr. Joel Fuhrman (who often does ‘specials’ for PBS), Dr. Mehmet Oz, and Adelle Davis whom I latched onto in the Sixties and never let go. Her main book is Let’s Eat Right to Keep Fit  and it is really amazing how true her information is today in 2014 as it was in 1954. Good grief, that is 60 years ago!

When friends ask me what I do, I start by saying I gave up everything white, which I did. No white bread, no cake (well, duh), no white rice, no white potato, no white pasta, etc. What else that I do NOT eat: no dairy, no sugar, no exceptions.

That is an easy way to explain it in telegram format. Then if they want more detail, and they usually do, I go into more depth explaining what 5 things I DO eat daily. So here goes.

(1)  I eat a large green salad every day, and put some raw onion and add in some shredded cruciferous veggies. I dress it with walnut oil and apple cider vinegar. That is my principle meal of the day and I really look forward to it.

(2)  I eat ½ to 1 cup of hot soup or stew containing beans and other low-glycemic vegetables (no potatoes). I prepare it on the weekend and then have some each weekday. Here is the low-glycemic veggie list that Dr. Oz suggests. http://www.doctoroz.com/videos/low-glycemic-vegetable-list

(3)  I eat 1-3 fresh fruits a day, especially berries, plums, apples, and oranges. Not sure that those fruits are the absolute best for nutrition and weight loss, but they are the ones I like best. 🙂

(4)  I eat about an ounce of roasted or raw nuts and seeds daily, utilizing some chia seeds, flax seeds, and walnuts. I splurged on a Vitamix Blender and formerly used a Nutri-Bullet blender to pulverize these foods into smoothies.

(5)  I eat a large serving of steamed greens daily, and add onions in all of these dishes since Dr Joel Fuhrman writes about how healthy onions are and he raves about their anti-cancer properties. Besides that, I like their taste so it is easy to incorporate them into all my meals.

You may be wondering, “Where’s the beef?”  Well, I do eat animal protein, but just in small quantities. I mostly eat salmon and chicken and then dice it and put it into my green salad. That is where the “post polio friendly” bit comes in. I remember a wonderful article by Dr. Lauro Halstead saying how protein at each meal helped him with weight loss and energy; it was probably in Managing Post-Polio: A Guide to Living and Aging Well with Post-Polio Syndrome.

Now, I must conclude by saying you seem to be an ideal weight to me, Sunny. However, friends used to say that about me and only I knew what I was hiding under all those baggy clothes. Ha ha.

Any more questions? I am more than happy to answer them.

Hugs and Happiness,

Linda
Linda Wheeler Donahue
President, The Polio Outreach of CT
Director, Independence Northwest
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